A patients perspective
Lucy has a genetic connective tissue disorder, Ehlers Danlos Syndrome (EDS), which has meant she has faced severe chronic pain since she was 10 years old. Prescribed opiate medication every day from age 12, Lucy was finally able to taper off fentanyl at 19, when she had access to medical cannabis.
For Lucy, EDS means her joints dislocate very easily without trauma, sending her to A&E for emergency relocation and opiate medication many times. At just 20 years old, Lucy has already undergone spinal, hip, jaw, abdominal and bladder surgeries to attempt to manage the condition.
From a young age, many different pain medications were trialled to try to manage her symptoms. Prescribed opiate medication every day from age 12, Lucy was finally able to taper off fentanyl at 19, when she had access to medical cannabis.
For Lucy, opiates did very little to manage the debilitating pain and caused issues with dependency. Lucy became increasingly numb to her emotions. There are week-long periods that she is hardly able to remember due to being ‘zombified’ by medication. Her digestive system was also majorly affected, meaning she became reliant on a feeding tube for 3 years.
Lucy feels her health has never been better, and while her condition is not cured, her quality of life is much greater than she could have ever imagined.
After being given a platform by the UPA, Lucy has had the opportunity to educate medical professionals on her journey and now regularly features in the media. She is one of many patients whose voices are waiting to be heard.
Lucy is passionate about helping other patients access this medicine and working towards a healthcare system that integrates the use of medicinal cannabis in the UK.